Rare diseases and aesthetic dermatology treatments (Ehlers-Danlos?)

I am female, mid-40s, light olive skin tone, and a former sun-worshipper. I have Ehlers-Danlos Type 3. My joints are very lax and my skin is velvety soft and easily damaged. In addition, I have OCD (CSP), not a great combination. In my experience, it has been difficult to find physicians with knowledge, much less experience treating EDS patients. Even my genetics counselor couldn't recommend a dermatologist, and EDS was originally identified by two dermatologists. Can you recommend anyone in the Los Angeles area north? And can you provide recommendations for the best products for EDS patients? Thanks.

If you have a rare disease, you won’t be able to find a dermatologist with a lot of  experience with that disease, precisely because it is so rare!!!

But………I hear your frustration and the best thing to do in this situation is:

  • Try calling the dermatology divisions at the nearest large academic center (like UCLA)  and ask if there’s anyone on staff who specializes in your disease. If you also want aesthetic treatments, ask if there is anyone who does both;  Link to California doctors.
  • Look for doctors who are double board certified in dermatology and internal medicine  Most of us have a greater interest then average in these rare diseases and how they fit with cosmetic dermatology also.
  • It’s best to stick with products for sensitive skin for now until you find a dermatologist you trust.  Some organic products like these may be also helpful. 

Dr. I

Dr. Brandith Irwin, MD

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Hi, I’m Dr. Irwin. I believe that consumers deserve a medically trained and unbiased skin care advocate.

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