Rare diseases and aesthetic dermatology treatments (Ehlers-Danlos?)
If you have a rare disease, you won’t be able to find a dermatologist with a lot of experience with that disease, precisely because it is so rare!!!
But………I hear your frustration and the best thing to do in this situation is:
- Try calling the dermatology divisions at the nearest large academic center (like UCLA) and ask if there’s anyone on staff who specializes in your disease. If you also want aesthetic treatments, ask if there is anyone who does both; Link to California doctors.
- Look for doctors who are double board certified in dermatology and internal medicine Most of us have a greater interest then average in these rare diseases and how they fit with cosmetic dermatology also.
- It’s best to stick with products for sensitive skin for now until you find a dermatologist you trust. Some organic products like these may be also helpful.